Summary:
Vibrent Health, a pioneering software-as-a-service firm specializing in precision genomics research, has established the largest research dataset dedicated to individuals within the LGBTQIA+ community. This historic achievement was made possible through Vibrent’s collaboration with the National Institutes of Health (NIH) All of Us Research Program.
The program’s emphasis on gathering data related to gender identity and sexual orientation from one million participants marks a significant milestone in medical research, as noted by Dr. Mitchell R. Lunn of Stanford University School of Medicine. Dr. Lunn, co-director of PRIDEnet, a national engagement partner of All of Us, highlighted the dataset’s potential to enhance understanding of the health needs and experiences within LGBTQIA+ communities.
Vibrent’s digital platform facilitates participant consent for donating biosamples and various forms of data, including clinical records and wearable technology insights, to the extensive All of Us dataset. This dataset supports numerous research studies nationwide and grants participants access to their genetic findings through Vibrent’s platform.
According to Mark Begale, Lead PI for Participant Technology Services Center, Vibrent Health played a pivotal role in developing tools that enhance the assessment of sex at birth, gender identity, and sexuality within the dataset. CEO Praduman (PJ) Jain emphasized the importance of inclusivity and trust-building in research, particularly in scaling initiatives like the All of Us Research Program to accommodate the diverse LGBTQIA+ community.
This milestone underscores the vital role of digital methodologies in augmenting community-focused research efforts and underscores Vibrent Health’s commitment to advancing healthcare through innovative technology and inclusive practices.
Article written by Molly Briant
28/06/2024
Source:
Business Wire
https://www.businesswire.com/news/home/20240628350321/en/NIH-All-of-Us-Research-Program-Reaches-Milestone-of-the-Largest-LGBTQIA-Health-Dataset-Powered-by-Vibrent-Health%E2%80%99s-Research-Software